Thursday, May 13, 2010

Getting somewhere...

Today we took Miss Havyn in for her swallow study. It is so nice to finally be getting some real answers. She was indeed aspirating when she was swallowing her bottle. I cannot imagine how painful that must have been. She has gained almost 3.5 lbs since coming home 2 months ago- and yet she is still a teeny tiny little thing. At 8 mo. old now she is still wearing 0-3 month clothing. We fondly call her 'Little Bit' at home. My awesome friend, Michelle, (who endured 2 days of doctors appointments with me and a tired and hungry infant) and I were laughing because EVERYONE we walk by stops and oogles over Havyn. They just go on and on about how beautiful she is. It was quite humorous because we couldn't take 3 steps without someone commenting on how adorable she is. :0) And Havyn, despite 2 not so fun days of testing, smiled at them all.

We had the most amazing OT today at the hosptial. She was super sweet and such a blessing. It was actually really cool to be able to see what was going on inside of Havyn while she ate and finally have a plan to make things better for her.

I was just sitting here thinking about how truly amazing God is and counting the so many blessings HE has given us. I am so thankful for our agency- Celebrate Children International who got Havyn home so quickly-allowing us to start focusing and fixing these issues. I am so thankful for my amazing husband who loves us beyond words and provides for our every need. I am so thankful for my kids who never complain about getting less time when mom has some extra stuff to take care of. I am so thankful for our church who cares so much about my family and for friends who are willing to drop everything and be there when needed. I am thankful for my parents who drove here from Illinois to love on my children and support us no matter what. I am so thankful for YOU my sweet blog readers who take the time to leave precious comments, share your experiences, and most importantly offer up your prayers. None of us can argue that there are times when this life is just not easy. But I am so thankful to serve a God who meets our every need- and always gives us more than we could ever ask for.


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13 comments:

The Watczaks said...

Praise God we live in a time and place where we can get answers like this, amen?! :)

my little girl has special needs. her syndrome is often accompanied by feeding difficulties. Emma is G-tube fed. GI issues are so frustrating, i completely understand!!

Stop by and meet our little girl sometime. God bless you for all you are doing for your precious daughter!

Mo said...

Praise God! You saw an OT! I will keep praying!

We are very thankful for CCI as well, they are awesome!

Anonymous said...

She is precious, indeed! Glad that you got some answers today and look forward to hearing that she is feeling/eating so much better! Love you!

Heather

Christie said...

Amy,

So glad you were able to get some answers today. Continuing to pray.

I can't imagine why everyone would be so smitten with Havyn...ugh, I can't get enough of her!!

Love and hugs to you!
Christie

Angie said...

I'm not surprised that you were stopped every 3 steps...she is absolutely beautiful. And thankful to hear that the OT can help her!

The Philpots said...

Praise the Lord!

It's so funny, you know our kiddos make friends wherever they go too. It's true, all three of them are beautiful babies! Sounds like Isaiah and Havyn are meant to be for sure! ;)

Shonni said...

I'm so glad that you are finding answers to help her. And she IS adorable!!!

Laura said...

That's so great! And as an OT-in-training, it's really wonderful to hear from a parent's perspective that our work can make a difference. You are a great Mom for noticing that something just wasn't going right and finding the resources to get your daughter what she needs!

missy said...

she's such a beauty. my daddy called me "little bit" so that nickname has a special place in my heart. i am glad havyn (incredible name, by the way) is home with you and getting the help she needs.

i just noticed your description where you write you had 4 kids "the regular old way". i love that. you have a precious and inspirational family.

Mom to 9 Blessings! said...

Goodness oogle - I would be all over her if she was in a 10 ft area of me. That girl is CUUUTEEE!

Praising God for the answers you are receiving and the healing taking place in Havyn already!

LOVE YOU!
Jill

BrandiB said...

So very happy to hear you got some answers! Prayers going your way for continuing healing!

Mrs. Michelle said...

God truly answered our prayers! I am thankful that you will have peace and can keep helping "little bit" to grow even stronger and more beautiful!

It truly was a privilege to be by your side as God directed the steps to answers.

Jacksmom said...

I am so glad you are getting answers. The worst part is that she is still having those awful preemie issues. What are the plans now? I'm glad she was able to come home too so you could get a sort of head start on getting these issues settled! She should probably start to gain lots more once she can stop aspirating.